“Narcolepsy takes your world and sort of flips it upside down.” – Scott
Every Story About Narcolepsy Is Different
Hearing stories from people living with narcolepsy can help when evaluating for the disorder in clinical practice.
All people living with narcolepsy have their own story about their experience with the disorder. For some of your patients, having narcolepsy may mean missing or avoiding social events.1-4 For others, it may mean struggling to stay awake, or performing poorly at work or in school.4,5
Get to know people living with narcolepsy through stories about how the disorder has had an impact on their everyday life. Knowing these real stories may help with recognizing symptoms in your patients and reduce the burden of narcolepsy.
People Living With Narcolepsy Are the Same as Everyone Else
Narcolepsy Doesn’t Rule Her Life
Living With Narcolepsy Day-to-Day
Support System for People With Narcolepsy
28 years old
Bookkeeper and competitive snowmobiler, living with narcolepsy
Emily knows those living with narcolepsy are no different from anyone else. Listen to her story as she shares how narcolepsy symptoms can be mislabeled by others who don’t understand the disorder.
Emily shares how narcolepsy is a part of her life, but doesn’t rule it. Hear about what symptoms she experiences and how she lives her life with narcolepsy.
Hear the narcolepsy tips and tricks Emily has to share about the small changes she has made to help her day-to-day.
Hear from Emily as she shares the importance of people with narcolepsy having a support system and who she includes in hers.
Biggest Impact of Narcolepsy
How Narcolepsy Affects Relationships
Advice for Living With Narcolepsy
Narcolepsy With Cataplexy
48 years old
Stay-at-home dad, living with narcolepsy with cataplexy
Scott shares why he believes narcolepsy changed the way his friends and family saw him and how the disorder set the course for his life today.
Living with narcolepsy “drove a wedge” between Scott and his parents.
Scott shares his experience living with narcolepsy and offers advice to others living with the disorder. Hear his thoughts about finding support, the right doctor, as well as the inner resilience needed to manage life with narcolepsy.
Learn about Scott’s cataplexy triggers and hear how he describes complete loss of muscle control, as well partial cataplexy that he describes as feeling like a “little short circuit.”
What Cataplexy Can Feel Like
Narcolepsy Changed My Life
Excessive Daytime Sleepiness (EDS) and Its Daily Impact
29 years old
Philosophy graduate student, living with narcolepsy with cataplexy
Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.
Nicki, whose cataplexy is triggered by negative emotions, shares how she has adapted her disposition and tries to stay positive to avoid attacks.
Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.
- Overeem S. The clinical features of cataplexy. In: Baumann CR, Bassetti CL, Scammell TE, eds. Narcolepsy: Pathophysiology, Diagnosis, and Treatment. Springer-Verlag New York; 2011:283-290.
- Daniels E, King MA, Smith IE, Shneerson JM. Health-related quality of life in narcolepsy. J Sleep Res. 2001;10(1):75-81.
- Maski K, Steinhart E, Williams D, et al. Listening to the patient voice in narcolepsy: diagnostic delay, disease burden, and treatment efficacy. J Clin Sleep Med. 2017;13(3):419-425.
- Thorpy M, Morse AM. Reducing the clinical and socioeconomic burden of narcolepsy by earlier diagnosis and effective treatment. Sleep Med Clin. 2017;12(1):61-71.
- American Academy of Sleep Medicine. International Classification of Sleep Disorders. 3rd ed.; 2014.