“It's about being open with people and asking for help when I need it.”– Katie

Get tips from others living with narcolepsy. Sign Up Now »

Get tips from others living with narcolepsy. Sign up now »

Tips for Living With Narcolepsy

People living with narcolepsy share their experiences.

See what others living with narcolepsy say has helped them in managing day to day, preparing for visits with their healthcare providers, and building out their support network.

Tips for Daily Living With Narcolepsy

Katie, Sharon, Ijeoma, & Leah

Hear tips for daily living with narcolepsy from people who have narcolepsy. From building a daily routine to practicing mindfulness, people living with narcolepsy share how they have learned to manage their symptoms day to day.

Communication is a two-way street. In order for me to get most out of my appointments, I have to put in the effort to make sure that I'm doing my part to communicate.

Matt, living with narcolepsy

Stories Tips Video Poster
Watch Video

TIPS FOR LIVING WITH NARCOLEPSY

Download this handout to learn tips from others living with narcolepsy.

Download PDF

Email PDF

TIPS FOR LIVING WITH NARCOLEPSY

TIPS FOR LIVING WITH NARCOLEPSY
Icon Calendar

Narcolepsy symptoms can have a significant impact.

Discover »
Icon Stories

Check out videos and stories from others in the narcolepsy community.

Discover »
Connect With Know Narcolepsy on Social Media:
YouTubeFacebookInstagram

Vivid dream-like experiences that occur while falling asleep or while waking up.

Occurs at night and includes dreams; muscles are not active to prevent people from acting out dreams.

People with type 1 narcolepsy can be diagnosed by their cataplexy or low levels of hypocretin.

The cause of type 2 narcolepsy is unknown.

Restorative sleep state with decreased muscle tone.

Daytime and evening habits to improve sleep.

Brief total loss of voluntary muscle control when falling asleep or while waking up.

A naturally occurring chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time.

Unintentionally falling asleep due to excessive daytime sleepiness; “sleep attacks.”

The inability to stay awake and alert during the day; a constant need for sleep or unintentionally falling asleep.

A naturally occurring chemical in the brain that helps maintain wakefulness.

Vivid dream-like experiences that occur while falling asleep or while waking up.

Frequent shifts between different states of sleep and wakefulness at night.

Difficulty focusing or concentrating.

Brief loss of muscle tone with retained awareness, often triggered by strong emotions.

Performance of routine tasks without awareness or memory.