“The more knowledge we have, the better we can communicate what we’re going through.”– Sharon

Get ongoing support for living with narcolepsy. Sign Up Now »

Get ongoing support for living with narcolepsy. Sign Up Now »

Discussion Guides and Tools

Know Narcolepsy provides tools to help better understand your symptoms and their impact.

Download our educational resources and connect with us on social media.

Know Narcolepsy Tools

Know Narcolepsy assessment tool mobile image

Know Narcolepsy assessment tool mobile image

Narcolepsy Assessment Tool

Assess how narcolepsy may be interfering with your life and share the results with your healthcare provider. Get started »

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Time to unwind mindfulness videos mobile image

Time to Unwind Mindfulness Videos

Reduce stress with mindfulness. Try these 3 guided videos to help you breathe easier, loosen up, and picture peace. Get started »

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Science of narcolepsy mobile image

Science of Narcolepsy Handout

Learn about the natural chemicals in the brain that play a role in wakefulness and sleep and how they affect narcolepsy. Download PDF »

Tips for Living
With Narcolepsy

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Tips for Living With Narcolepsy Handout

See what others living with narcolepsy say has helped them in managing day to day, preparing for visits with their healthcare professionals, and building out their support network. Download PDF »

Navigating narcolepsy through changing times mobile image

Navigating narcolepsy through changing times mobile image

Navigating Narcolepsy Handout

Learn how others living with narcolepsy have managed during challenging times. Download PDF »

Guide to telemedicine tool mobile image

Guide to telemedicine tool mobile image

Guide to Telemedicine

Feel confident about your next virtual appointment. Use this guide to learn what to expect and how to prepare. Download PDF »

Know Narcolepsy Survey*

Know Narcolepsy Survey*

Learn about the impact of narcolepsy and the results from the Know Narcolepsy Survey. Download PDF »

*The Know Narcolepsy Survey was a three-part survey of 1654 US adults including those with narcolepsy (n=200), the general public (n=1203), and physicians (n=251) currently in clinical practice who have treated patients with narcolepsy in the last two years. Surveys of people with narcolepsy and the general public were conducted online in March and April 2018, and physicians were surveyed in August 2018. Versta Research conducted the survey on behalf of Harmony Biosciences. Narcolepsy Network collaborated on the patient survey.

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Vivid dream-like experiences that occur while falling asleep or while waking up.

Occurs at night and includes dreams; muscles are not active to prevent people from acting out dreams.

People with type 1 narcolepsy can be diagnosed by their cataplexy or low levels of hypocretin (also known as orexin).

The cause of type 2 narcolepsy is unknown.

Restorative sleep state with decreased muscle tone.

Daytime and evening habits to improve sleep.

Brief total loss of voluntary muscle control when falling asleep or while waking up.

Also known as orexin, hypocretin is a naturally occurring chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time.

Unintentionally falling asleep due to excessive daytime sleepiness; “sleep attacks.”

The inability to stay awake and alert during the day; a constant need for sleep or unintentionally falling asleep.

A naturally occurring chemical in the brain that helps maintain wakefulness.

Vivid dream-like experiences that occur while falling asleep or while waking up.

Frequent shifts between different states of sleep and wakefulness at night.

Difficulty focusing or concentrating.

Brief loss of muscle tone with retained awareness, often triggered by strong emotions.

Performance of routine tasks without awareness or memory.