“The exhaustion is just indescribable.”– Scott

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What Is Excessive Daytime Sleepiness?

All people living with narcolepsy have excessive daytime sleepiness (EDS).

People living with narcolepsy feel a constant and often uncontrollable desire to sleep throughout the day, resulting in a constant and uncontrollable need for sleep or unintentionally falling asleep.

Excessive daytime sleepiness is more than just falling asleep.

Nicki EDS Impact Video
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Excessive Daytime Sleepiness (EDS) and Its Daily Impact

Nicki
Living with narcolepsy

Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.

You’re trying to fight the fog, to appear normal and excited to see friends.

Nicki, living with narcolepsy

Nicki EDS Impact Video
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Nicki EDS Impact Video

Excessive Daytime Sleepiness (EDS) and Its Daily Impact

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Recognizing Narcolepsy and Excessive Daytime Sleepiness

Excessive Daytime Sleepiness (EDS) and Its Daily Impact

Nicki
Living with narcolepsy

Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.

Recognizing Narcolepsy and Excessive Daytime Sleepiness

Matt
Living with narcolepsy

In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of excessive daytime sleepiness associated with narcolepsy.

You’re trying to fight the fog, to appear normal and excited to see friends.

Nicki, living with narcolepsy

Excessive daytime sleepiness is more than just falling asleep.

EDS Icon
Obvious Effects of Excessive Daytime Sleepiness

The pressure for sleep may be so great that people living with narcolepsy need to nap or sometimes nap uncontrollably.

They may do things with no awareness or memory (automatic behavior), such as writing, cooking, or talking to a friend.

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Matt Eds Video Poster
Watch Video

Recognizing Narcolepsy and Excessive Daytime Sleepiness

Matt
Living with narcolepsy

In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of excessive daytime sleepiness associated with narcolepsy.

Less Obvious EDS Icon
Less Obvious Effects of Excessive Daytime Sleepiness

People living with narcolepsy rarely feel alert and fully awake.

Because of their excessive daytime sleepiness, people living with narcolepsy may struggle with making decisions, memory, or following a conversation. They may be unable to pay attention, concentrate, or remain awake in school, in meetings, or while reading.

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How much is narcolepsy interfering with your daily activities or enjoyment of life?

Take this assessment a few times each year before visiting with your healthcare provider. Print or email your results and share them with your healthcare team to help you have informed discussions about your management plan.

Assess your symptoms »

Your
Narcolepsy Symptoms

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What causes narcolepsy symptoms?

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NEW CATAPLEXY

Most people living with narcolepsy have cataplexy, but may not recognize it.

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Vivid dream-like experiences that occur while falling asleep or while waking up.

Occurs at night and includes dreams; muscles are not active to prevent people from acting out dreams.

People with type 1 narcolepsy can be diagnosed by their cataplexy or low levels of hypocretin.

The cause of type 2 narcolepsy is unknown.

Restorative sleep state with decreased muscle tone.

Daytime and evening habits to improve sleep.

Brief total loss of voluntary muscle control when falling asleep or while waking up.

A naturally occurring chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time.

Unintentionally falling asleep due to excessive daytime sleepiness; “sleep attacks.”

The inability to stay awake and alert during the day; a constant need for sleep or unintentionally falling asleep.

A naturally occurring chemical in the brain that helps maintain wakefulness.

Vivid dream-like experiences that occur while falling asleep or while waking up.

Frequent shifts between different states of sleep and wakefulness at night.

Difficulty focusing or concentrating.

Brief loss of muscle tone with retained awareness, often triggered by strong emotions.

Performance of routine tasks without awareness or memory.