“Sometimes a nap is 20 minutes. Sometimes it is 3 hours.” – Nicki

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What Is Excessive Daytime Sleepiness?

All people living with narcolepsy have excessive daytime sleepiness (EDS).

People living with narcolepsy feel a constant and often uncontrollable desire to sleep throughout the day. They may report feeling tired, fatigued, or that they have mental fog.

Nicki EDS Impact Video
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Excessive Daytime Sleepiness (EDS) and Its Daily Impact

Nicki, 29 years old
Philosophy graduate student, living with narcolepsy with cataplexy

Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.

Nicki EDS Impact Video
Watch Video

Excessive Daytime Sleepiness (EDS) and Its Daily Impact

Nicki, 29 years old
Philosophy graduate student, living with narcolepsy with cataplexy

Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.

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Recognizing Narcolepsy and Excessive Daytime Sleepiness

Matt, 37 years old
Living with narcolepsy with cataplexy

In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of EDS associated with narcolepsy.

Nicki EDS Impact Video

Excessive Daytime Sleepiness (EDS) and Its Daily Impact

Matt Eds Video Poster

Recognizing Narcolepsy and Excessive Daytime Sleepiness

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What causes narcolepsy symptoms?

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You’re trying to fight the fog, to appear normal and excited to see friends.

Nicki, 29 years old, living with narcolepsy with cataplexy

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What causes narcolepsy symptoms?

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Performance of routine tasks without awareness or memory.

Difficulty focusing or concentrating.

Brief loss of muscle tone with retained awareness, often triggered by strong emotions.

Frequent shifts between different states of sleep and wakefulness at night.

The inability to stay awake and alert during the day; a constant need for sleep or unintentionally falling asleep.

A chemical in the brain that helps maintain wakefulness.

Vivid dream-like experiences that occur while falling asleep.

Dream-like events that occur when falling asleep. Called hypnopompic hallucinations if they occur when waking up.

A chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time.

Unintentionally falling asleep due to excessive daytime sleepiness; “sleep attacks.”

Restorative sleep state with decreased muscle tone.

Occurs at night and includes dreams; muscles are not active to prevent people from acting out dreams.

Daytime and evening habits to improve sleep.

Brief total loss of voluntary muscle control when falling asleep or while waking up.

People with type 1 narcolepsy can be diagnosed by their cataplexy or low levels of hypocretin.

The cause of type 2 narcolepsy is unknown.