Terms and phrases to help know narcolepsy.
Know Narcolepsy provides important information and resources to help people living with narcolepsy, and their friends and family, understand symptoms and their impact, communicate with healthcare providers, and create strategies and tips for managing the day to day with narcolepsy.
Performance of routine tasks (e.g., writing, cooking) without awareness or memory.
A commonly used phrase to describe difficulty focusing or concentrating; confusion.
Sudden and brief loss of muscle strength or tone (e.g., knees buckling, jaw sagging) with retained awareness, often triggered by strong emotions. Narcolepsy with cataplexy is known as type 1 narcolepsy.
Complete collapse to the ground; usually takes several seconds to develop and all muscles are involved.
Only certain muscle groups are involved; facial, head, or neck weakness is common.
Frequent shifts between different states of sleep and wakefulness that occur at night, causing poor quality sleep. These disruptions significantly decrease restorative sleep stages.
The inability to stay awake and alert during the day, resulting in a constant and uncontrollable need for sleep or unintentionally falling asleep. The primary symptom of narcolepsy.
A chemical in the brain that helps maintain wakefulness. When histamine activity in the brain is high, people are typically awake.
Many people with narcolepsy have vivid dream-like experiences while falling asleep, called hypnagogic hallucinations. Hypnopompic hallucinations are similar experiences but they occur while waking up.
A chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time. Low levels of hypocretin cause the separate states of wakefulness and sleep to not work properly, shifting often from one state to another, leading to symptoms of narcolepsy.
Unintentionally falling asleep due to excessive daytime sleepiness. Also known as “sleep attacks.”
A state of sleep when muscle tone or tension is decreased. It is made up of different stages. Deep stages help to restore the body. People usually wake up more easily from light non-REM sleep than from deep non-REM sleep.
Rapid eye movement sleep; normally occurs at night and includes dreams. Most muscles are not active to prevent people from acting out their dreams.
Daytime and evening habits and routines to help improve sleep.
Brief total loss of control of voluntary muscles when people are typically fully aware of what is going on around them. Occurs when falling asleep or while waking up, and can be frightening.
Also often called narcolepsy with cataplexy. People with type 1 narcolepsy can be diagnosed by their cataplexy or, if measured, by low levels of hypocretin.
Also called narcolepsy without cataplexy. The cause of type 2 narcolepsy is unknown.