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Video Library
View stories from other people living with narcolepsy as they share how they describe their symptoms, the impact on everyday life, and helpful tips for managing their day to day.
Excessive Daytime Sleepiness and Its Daily Impact
Nicki
Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.
Recognizing Narcolepsy and Excessive Daytime Sleepiness
Matt
In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of excessive daytime sleepiness associated with narcolepsy.
People With Narcolepsy Are Often Misunderstood
Emily
Emily knows those living with narcolepsy are no different from anyone else. Listen to her story as she shares how narcolepsy symptoms can be mislabeled by others who don’t understand the disorder.
What Does Excessive Daytime Sleepiness With Narcolepsy Feel Like?
Emily, Scott, Sharon, & Sean
Four Personal Stories: Four people living with narcolepsy share their experience of what excessive daytime sleepiness feels like for them.
What Cataplexy Can Feel Like
Nicki
Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.
Emotions That Can Trigger Cataplexy Attacks
Sean
Cataplexy attacks have interfered with big moments in Sean’s personal and professional life, like when he got engaged. Narcolepsy with cataplexy affects everyone differently, but attacks are often brought on by strong emotions.
Avoiding Emotions to Control Cataplexy
Sean
Partial cataplexy in his face has impacted Sean's life. Avoiding emotions to control attacks has become part of his personality.
Social Situations Triggered My Cataplexy
Sharon
After experiencing cataplexy while holding her infant son, Sharon started to avoid social situations.
Narcolepsy Symptoms Can Include Sleep Paralysis, Hypnagogic Hallucinations
Emily, Sean, Sharon, & Scott
Narcolepsy symptoms can go beyond excessive daytime sleepiness and cataplexy. People living with narcolepsy share their experiences with hypnagogic/hypnopompic hallucinations, sleep paralysis, and disrupted nighttime sleep.
What Hypnagogic Hallucinations and Sleep Paralysis Can Feel Like
Gina
As a person living with narcolepsy, Gina describes what it feels like when she experiences hypnagogic hallucinations and sleep paralysis.
My Advice for Living With Narcolepsy
Scott
Scott shares his experience living with narcolepsy and offers advice to others living with the disorder. Hear his thoughts about finding support, the right doctor, as well as the inner resilience needed to manage life with narcolepsy.
Living With Narcolepsy Day to Day
Emily
Hear the narcolepsy tips and tricks Emily has to share about the small changes she has made to help her day to day.
Personal Stories of Living With Narcolepsy
Ijeoma, Matt, Sean, & Leah
People with narcolepsy share their personal stories, perspectives, and insights on living with narcolepsy. They share their thoughts on living a full and productive life with narcolepsy.
Tips for Daily Living With Narcolepsy
Katie, Sharon, Ijeoma, & Leah
Hear tips for daily living with narcolepsy from people who have narcolepsy. From building a daily routine to practicing mindfulness, people living with narcolepsy share how they have learned to manage their day to day.
My Narcolepsy Story: Living Above the Diagnosis
Ijeoma
For Ijeoma, her narcolepsy symptoms create many challenges in her professional and personal life. Despite these obstacles, she knows that narcolepsy does not define her.
Being an Active Participant in Your Narcolepsy Journey
Andre
Andre shares how he took control of his journey with narcolepsy by becoming an active participant in his story.
Putting My Health First – Tim's Narcolepsy Diagnosis Story
Tim
It took years for Tim to receive a narcolepsy diagnosis. He shares the challenges he faced along his journey and how he learned the importance of putting his health needs first.
Biggest Impact of Narcolepsy
Scott
Scott shares why he believes narcolepsy changed the way his friends and family saw him and how the disorder set the course for his life today.
Narcolepsy Doesn’t Rule Her Life
Emily
Emily shares how narcolepsy is a part of her life, but doesn’t rule it. Hear about what symptoms she experiences and how she lives her life with narcolepsy.
How to Answer, “What Is Narcolepsy?”
Matt
What is narcolepsy? Getting other people to understand the impact of narcolepsy symptoms is not easy. Hear from Matt on how he explains his narcolepsy symptoms to others.
How to Manage the Social Impact of Narcolepsy
Leah
Leah shares the impact of narcolepsy on her social life. If things don’t go as planned, she remembers that every day is a new opportunity.
A Parent’s Perspective: Being a Parent With Narcolepsy
Scott
Scott, a stay-at-home dad, shares his journey navigating fatherhood while living with narcolepsy.
Support System for People Living With Narcolepsy
Emily
Emily shares the importance of having a support system and who she includes in hers.
Finding Your Narcolepsy Support Group
Sharon
Finding your support group may take time, but be patient and remember that you are not alone.
Preparing for Your Next Doctor Appointment if Diagnosed With Narcolepsy
Matt, Leah, Ijeoma, Katie, & Sharon
Living with narcolepsy can be very challenging. Hear people living with narcolepsy explain their approach to working with their physician.
Managing Relationships and/or Social Life With Narcolepsy
Gina
Hear Gina talk about her experiences and share advice about setting boundaries with the important people in her life.
Talking to Your Friends and Family About Narcolepsy
Andre
A narcolepsy diagnosis can impact the whole family. Hear Andre describe how he sat down with the people in his life and began a journey of education and understanding.
Excessive Daytime Sleepiness and Its Daily Impact
Nicki
Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.
Recognizing Narcolepsy and Excessive Daytime Sleepiness
Matt
In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of excessive daytime sleepiness associated with narcolepsy.
People With Narcolepsy Are Often Misunderstood
Emily
Emily knows those living with narcolepsy are no different from anyone else. Listen to her story as she shares how narcolepsy symptoms can be mislabeled by others who don’t understand the disorder.
What Does Excessive Daytime Sleepiness With Narcolepsy Feel Like?
Emily, Scott, Sharon, & Sean
Four Personal Stories: Four people living with narcolepsy share their experience of what excessive daytime sleepiness feels like for them.
What Cataplexy Can Feel Like
Nicki
Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.
Emotions That Can Trigger Cataplexy Attacks
Sean
Cataplexy attacks have interfered with big moments in Sean’s personal and professional life, like when he got engaged. Narcolepsy with cataplexy affects everyone differently, but attacks are often brought on by strong emotions.
Social Situations Triggered My Cataplexy
Sharon
After experiencing cataplexy while holding her infant son, Sharon started to avoid social situations.
Avoiding Emotions to Control Cataplexy
Sean
Partial cataplexy in his face has impacted Sean's life. Avoiding emotions to control attacks has become part of his personality.
Narcolepsy Symptoms Can Include Sleep Paralysis, Hypnagogic Hallucinations
Emily, Sean, Sharon, & Scott
Narcolepsy symptoms can go beyond excessive daytime sleepiness and cataplexy. People living with narcolepsy share their experiences with hypnagogic/hypnopompic hallucinations, sleep paralysis, and disrupted nighttime sleep.
What Hypnagogic Hallucinations and Sleep Paralysis Can Feel Like
Gina
As a person living with narcolepsy, Gina describes what it feels like when she experiences hypnagogic hallucinations and sleep paralysis.
My Advice for Living With Narcolepsy
Scott
Scott shares his experience living with narcolepsy and offers advice to others living with the disorder. Hear his thoughts about finding support, the right doctor, as well as the inner resilience needed to manage life with narcolepsy.
Living With Narcolepsy Day to Day
Emily
Hear the narcolepsy tips and tricks Emily has to share about the small changes she has made to help her day to day.
Personal Stories of Living With Narcolepsy
Ijeoma, Matt, Sean, & Leah
People with narcolepsy share their personal stories, perspectives, and insights on living with narcolepsy. They share their thoughts on living a full and productive life with narcolepsy.
Tips for Daily Living With Narcolepsy
Katie, Sharon, Ijeoma, & Leah
Hear tips for daily living with narcolepsy from people who have narcolepsy. From building a daily routine to practicing mindfulness, people living with narcolepsy share how they have learned to manage their day to day.
My Narcolepsy Story: Living Above the Diagnosis
Ijeoma
For Ijeoma, her narcolepsy symptoms create many challenges in her professional and personal life. Despite these obstacles, she knows that narcolepsy does not define her.
Being an Active Participant in Your Narcolepsy Journey
Andre
Andre shares how he took control of his journey with narcolepsy by becoming an active participant in his story.
Putting My Health First – Tim's Narcolepsy Diagnosis Story
Tim
It took years for Tim to receive a narcolepsy diagnosis. He shares the challenges he faced along his journey and how he learned the importance of putting his health needs first.
Biggest Impact of Narcolepsy
Scott
Scott shares why he believes narcolepsy changed the way his friends and family saw him and how the disorder set the course for his life today.
Narcolepsy Doesn’t Rule Her Life
Emily
Emily shares how narcolepsy is a part of her life, but doesn’t rule it. Hear about what symptoms she experiences and how she lives her life with narcolepsy.
How to Answer, “What Is Narcolepsy?”
Matt
What is narcolepsy? Getting other people to understand the impact of narcolepsy symptoms is not easy. Hear from Matt on how he explains his narcolepsy symptoms to others.
How to Manage the Social Impact of Narcolepsy
Leah
Leah shares the impact of narcolepsy on her social life. If things don’t go as planned, she remembers that every day is a new opportunity.
A Parent’s Perspective: Being a Parent With Narcolepsy
Scott
Scott, a stay-at-home dad, shares his journey navigating fatherhood while living with narcolepsy.
Support System for People Living With Narcolepsy
Emily
Emily shares the importance of having a support system and who she includes in hers.
Finding Your Narcolepsy Support Group
Sharon
Finding your support group may take time, but be patient and remember that you are not alone.
Preparing for Your Next Doctor Appointment if Diagnosed With Narcolepsy
Matt, Leah, Ijeoma, Katie, & Sharon
Living with narcolepsy can be very challenging. Hear people living with narcolepsy explain their approach to working with their physician.
Managing Relationships and/or Social Life With Narcolepsy
Gina
Hear Gina talk about her experiences and share advice about setting boundaries with the important people in her life.
Talking to Your Friends and Family About Narcolepsy
Andre
A narcolepsy diagnosis can impact the whole family. Hear Andre describe how he sat down with the people in his life and began a journey of education and understanding.
Hear different perspectives on In the Know: A Narcolepsy Mini-Podcast.
Read stories from people living with narcolepsy on Know Our Stories: A Narcolepsy Blog.