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Know Our Stories: A Narcolepsy Blog
Read stories written by members of the narcolepsy community. In their own words, they share their journeys with the disorder, the challenges they face in everyday life, and the importance of being a self-advocate.

Andre
Being Your Own Advocate: Living With Narcolepsy
As a person living with narcolepsy, what does it mean to be your own advocate? For me, it began even before I got my narcolepsy diagnosis...
Read more »
Scott
Narcolepsy With Cataplexy: Live Each Day to the Fullest
For those of us living with narcolepsy with cataplexy, at some point someone we care about may refer to us as lazy or even worthless...
Read more »
Scott
Living With Narcolepsy With Cataplexy: Felt Like A Short Circuit Within My Brain
Just prior to narcolepsy entering my life, I was on the highway to a bright and prosperous future. I was an excellent student, athletic, and driven to succeed. Then narcolepsy merged into my lane...
Read more »
Gina
Living With Narcolepsy Day to Day: Winter Mornings
I’ve always wanted to be one of those moms, the kind that gets up at 5:30 in the morning. Maybe drinks a cup of coffee or goes for a walk, all before the kids wake up. Living with narcolepsy and excessive daytime sleepiness (EDS) isn’t always like that...
Read more »
Andre
My Days Living With Narcolepsy: Self-Care Helps
Imagine the most exhausting morning you have ever experienced. Remember how heavy every muscle in your body felt…
Read more »
Matt
Navigating the Holidays With Narcolepsy: From Fear to Courage
For many, holidays hold a few constants: family and gatherings. Both the presence and absence of family can elicit strong feelings…
Read more »
Matt
Navigating the Holidays With Narcolepsy: Building A Narcolepsy Toolbox
For years, the lead-up to holidays was full of anxiety and fear—knowing that disruptions were coming and feeling powerless…
Read more »
Gina
The Search for an Answer: My Diagnosis of Narcolepsy with Cataplexy
Before I was diagnosed with narcolepsy with cataplexy, I was a full-time working mom and wife. Live was chaotic, stressful, and at times unmanageable…
Read more »
Andre
My Narcolepsy Diagnosis: It Didn’t Change Everything
I love my family, and I love to cook. I worked hard as a chef. When I was home, I enjoyed making dinner for the kids and reading them stories. But I started to notice that I would nod off while sharing a book or playing games with my family…
Read more »
Matt
2022 Sleep Awareness Week: Raising Awareness Helps Everyone
Living with narcolepsy is not a punchline. We wake up every day feeling like we haven't slept for 48 hours, with periods of sleepiness where it feels like 72 hours without sleep…
Read more »
Leah
Living With Narcolepsy: Honesty Just Might Be the Best Policy
I teach eighth grade. For a person living with narcolepsy, you might think that poses an insurmountable challenge…
Read more »
Emily
2022 Sleep Awareness Week: Together Our Voices Can Help
Everyone knows what it feels like to be tired, but narcolepsy is so much more than that. The symptoms can mirror so many other disorders…
Read more »
Andre
Working With Narcolepsy: Tips and Habits to Help Throughout the Day
As a chef, my work environment often alternated between the frantic hustle and bustle of a large kitchen and the silent solitude of preparing larger family-style dishes as a private caterer. As a person living with narcolepsy, either scenario could pose challenges…
Read more »
Andre
Being Your Own Advocate: Living With Narcolepsy
As a person living with narcolepsy, what does it mean to be your own advocate? For me, it began even before I got my narcolepsy diagnosis...

Scott
Narcolepsy With Cataplexy: Live Each Day to the Fullest
For those of us living with narcolepsy with cataplexy, at some point someone we care about may refer to us as lazy or even worthless...

Scott
Living With Narcolepsy With Cataplexy: Felt Like A Short Circuit Within My Brain
Just prior to narcolepsy entering my life, I was on the highway to a bright and prosperous future. I was an excellent student, athletic, and driven to succeed. Then narcolepsy merged into my lane...
Read more »
Gina
Living With Narcolepsy Day to Day: Winter Mornings
I’ve always wanted to be one of those moms, the kind that gets up at 5:30 in the morning. Maybe drinks a cup of coffee or goes for a walk, all before the kids wake up. Living with narcolepsy and excessive daytime sleepiness (EDS) isn’t always like that...

Andre
My Days Living With Narcolepsy: Self-Care Helps
Imagine the most exhausting morning you have ever experienced. Remember how heavy every muscle in your body felt…
Read more »
Matt
Navigating the Holidays With Narcolepsy: From Fear to Courage
For many, holidays hold a few constants: family and gatherings. Both the presence and absence of family can elicit strong feelings…
Read more »
Matt
Navigating the Holidays With Narcolepsy: Building A Narcolepsy Toolbox
For years, the lead-up to holidays was full of anxiety and fear—knowing that disruptions were coming and feeling powerless…

Gina
The Search for an Answer: My Diagnosis of Narcolepsy with Cataplexy
Before I was diagnosed with narcolepsy with cataplexy, I was a full-time working mom and wife. Live was chaotic, stressful, and at times unmanageable…

Andre
My Narcolepsy Diagnosis: It Didn’t Change Everything
I love my family, and I love to cook. I worked hard as a chef. When I was home, I enjoyed making dinner for the kids and reading them stories. But I started to notice that I would nod off while sharing a book or playing games with my family…

Matt
2022 Sleep Awareness Week: Raising Awareness Helps Everyone
Living with narcolepsy is not a punchline. We wake up every day feeling like we haven't slept for 48 hours, with periods of sleepiness where it feels like 72 hours without sleep…

Leah
Living With Narcolepsy: Honesty Just Might Be the Best Policy
I teach eighth grade. For a person living with narcolepsy, you might think that poses an insurmountable challenge…

Emily
2022 Sleep Awareness Week: Together Our Voices Can Help
Everyone knows what it feels like to be tired, but narcolepsy is so much more than that. The symptoms can mirror so many other disorders…

Andre
Working With Narcolepsy: Tips and Habits to Help Throughout the Day
As a chef, my work environment often alternated between the frantic hustle and bustle of a large kitchen and the silent solitude of preparing larger family-style dishes as a private caterer. As a person living with narcolepsy, either scenario could pose challenges…
See people living with narcolepsy share their journey with the disorder.
Hear different perspectives on In the Know: A Narcolepsy Mini-Podcast.