“It’s amazing to communicate with someone who knows what I'm going through.” – Scott
Every Story About Narcolepsy Is Different
Hearing personal stories about the impact of symptoms can help people living with narcolepsy, their family, and their friends better understand the disorder.
All people living with narcolepsy have their own story about their experience with the disorder. For some, having narcolepsy means missing or avoiding social events. For others, it means struggling to stay awake, or performing poorly at work or in school.
Get to know people living with narcolepsy through stories about how the disorder has had an impact on their everyday life and how they have learned to manage day to day with their symptoms.
48 years old
Stay-at-home dad, living with narcolepsy with cataplexy
Scott, a stay-at-home dad, shares why he believes narcolepsy changed the way his friends and family saw him and how the disorder set the course for his life today.
Living with narcolepsy “drove a wedge” between Scott and his parents.
What is the biggest impact of narcolepsy?
How did narcolepsy affect your relationships?
29 years old
Philosophy graduate student, living with narcolepsy with cataplexy
Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.
Nicki, whose cataplexy is triggered by negative emotions, shares how she has adapted her disposition and tries to stay positive to avoid attacks.
Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.
What does cataplexy feel like?
How has narcolepsy changed your life?
What is the day-to-day impact of EDS?