“No two people experience narcolepsy the same way.” – Katie

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Every Story About Narcolepsy Is Different

Listening to personal stories about the impact of symptoms can make a difference.

Everyone living with narcolepsy has a story to tell. Get to know this extraordinary group of people who are living with narcolepsy. In these personal videos, they share how narcolepsy has had an impact on their everyday lives and how they have learned to manage their symptoms. Watch now »

Ijeoma

Ijeoma

30 years old

Medical Communications Professional

Living with narcolepsy with cataplexy

Matt

Matt

37 years old

Property Manager

Living with narcolepsy with cataplexy

Leah

Leah

24 years old

Teacher

Living with narcolepsy with cataplexy

Sean

Sean

33 years old

Sales Person

Living with narcolepsy with cataplexy

Katie

Katie

33 years old

Consultant

Living with narcolepsy with cataplexy

Scott

Scott

48 years old

Stay-at-home dad

Living with narcolepsy with cataplexy

Emily

Emily

28 years old

Bookkeeper and competitive snowmobiler

Living with narcolepsy

Sharon

Sharon

43 years old

Case Manager

Living with narcolepsy with cataplexy

Nicki

Nicki

29 years old

Philosophy graduate student

Living with narcolepsy with cataplexy

Support for people living with narcolepsy is available.

Get Resources »
 
Nicki EDS Impact Video
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Excessive Daytime Sleepiness (EDS) and Its Daily Impact

Nicki, 29 years old

Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.

Matt Excessive Daytime Sleepiness Video
Watch Video

Recognizing Narcolepsy and Excessive Daytime Sleepiness

Matt, 37 years old

In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of EDS associated with narcolepsy.

Emily Diagnosis Video
Watch Video

People With Narcolepsy Are Often Misunderstood

Emily, 28 years old

Emily knows those living with narcolepsy are no different from anyone else. Listen to her story as she shares how narcolepsy symptoms can be mislabeled by others who don’t understand the disorder.

Nicki Cataplexy Triggers Video
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What Cataplexy Can Feel Like

Nicki, 29 years old

Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.

Sean Emotional Cataplexy Triggers Video
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Emotions That Can Trigger Cataplexy Attacks

Sean, 33 years old

Cataplexy attacks have interfered with big moments in Sean’s personal and professional life, like when he got engaged. Narcolepsy with cataplexy affects everyone differently, but attacks are often brought on by strong emotions.

Sean Avoiding Emotions Video
Watch Video

Avoiding Emotions to Control Cataplexy

Sean, 33 years old

Partial cataplexy in his face has impacted Sean’s life. Avoiding emotions to control attacks has become part of his personality.

Sharon Social Cataplexy Triggers Video
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Social Situations Triggered My Cataplexy

Sharon, 43 years old

After experiencing cataplexy while holding her infant son, Sharon started to avoid social situations.

Narcolepsy Symptoms Montage Video
Watch Video

Narcolepsy Symptoms Can Include Sleep Paralysis, Hypnagogic Hallucinations

Emily, Sean, Sharon, & Scott

Narcolepsy symptoms can go beyond excessive daytime sleepiness and cataplexy. People living with narcolepsy share their experiences with hypnagogic hallucinations, sleep paralysis, and disrupted nighttime sleep.

Scott Support Video
Watch Video

My Advice for Living With Narcolepsy

Scott, 48 years old

Scott shares his experience living with narcolepsy and offers advice to others living with the disorder. Hear his thoughts about finding support, the right doctor, as well as the inner resilience needed to manage life with narcolepsy.

Emily Daily Life Video
Watch Video

Living With Narcolepsy Day to Day

Emily, 28 years old

Hear the narcolepsy tips and tricks Emily has to share about the small changes she has made to help her day to day.

Montage Video of Personal Stories
Watch Video

Personal Stories of Living With Narcolepsy

Ijeoma, Matt, Sean, & Leah

People with narcolepsy share their personal stories, perspectives, and insights on living with narcolepsy. They share their thoughts on living a full and productive life with narcolepsy.

Montage Video of tips for living with narcolepsy
Watch Video

Tips for Daily Living With Narcolepsy

Ijeoma, Matt, Sean, & Leah

Hear tips for daily living with narcolepsy from people who have the disorder. From building a daily routine to practicing mindfulness, people living with narcolepsy share how they have learned to manage their symptoms day to day.

Scott Impact of Narcolepsy Video
Watch Video

Biggest Impact of Narcolepsy

Scott, 48 years old

Scott shares why he believes narcolepsy changed the way his friends and family saw him and how the disorder set the course for his life today.

Emily Managing Symptoms Video
Watch Video

Narcolepsy Doesn’t Rule Her Life

Emily, 28 years old

Emily shares how narcolepsy is a part of her life, but doesn’t rule it. Hear about what symptoms she experiences and how she lives her life with narcolepsy.

Matt How to explain narcolepsy video
Watch Video

How to Answer, “What Is Narcolepsy?”

Matt, 37 years old

What is narcolepsy? Getting other people to understand the impact of narcolepsy symptoms is not easy. Hear from Matt on how he explains his narcolepsy symptoms to others.

Leah Social impact of narcolepsy video
Watch Video

How to Manage the Social Impact of Narcolepsy

Leah, 24 years old

Leah shares the impact of narcolepsy on her social life. If things don’t go as planned, she remembers that every day is a new opportunity.

Emily Support Group Video
Watch Video

Support System for People Living With Narcolepsy

Emily, 28 years old

Emily shares the importance of having a support system and who she includes in hers.

Sharon Finding your narcolepsy support group video
Watch Video

Finding Your Narcolepsy Support Group

Sharon, 43 years old

Finding your support group may take time, but be patient and remember that you are not alone.

Katie Preparing for Next Appointment video
Watch Video

Preparing for Your Next Doctor Appointment if Diagnosed With Narcolepsy

Matt, Leah, Ijeoma, Katie, & Sharon

Living with narcolepsy can be very challenging. Hear people living with narcolepsy explain their approach to working with their physician.

Nicki EDS Impact Video
Matt Excessive Daytime Sleepiness Video
Emily Diagnosis Video
Nicki EDS Impact Video
Watch Video

Excessive Daytime Sleepiness (EDS) and Its Daily Impact

Nicki, 29 years old

Excessive daytime sleepiness has significantly affected Nicki’s life, especially due to “surprise naps” that have caused her to sleep through her own birthday celebration.

Matt Excessive Daytime Sleepiness Video
Watch Video

Recognizing Narcolepsy and Excessive Daytime Sleepiness

Matt, 37 years old

In college, Matt recognized that he was always the first one to leave the party, but he didn’t know it was because of EDS associated with narcolepsy.

Emily Diagnosis Video
Watch Video

People With Narcolepsy Are Often Misunderstood

Emily, 28 years old

Emily knows those living with narcolepsy are no different from anyone else. Listen to her story as she shares how narcolepsy symptoms can be mislabeled by others who don’t understand the disorder.

Nicki Cataplexy Triggers Video
Sean Emotional Cataplexy Triggers Video
Sean Avoiding Emotions Video
Sharon Social Cataplexy Triggers Video
Nicki Cataplexy Triggers Video
Watch Video

What Cataplexy Can Feel Like

Nicki, 29 years old

Nicki describes what triggers her cataplexy and what it feels like when she loses muscle control.

Sean Emotional Cataplexy Triggers Video
Watch Video

Emotions That Can Trigger Cataplexy Attacks

Sean, 33 years old

Cataplexy attacks have interfered with big moments in Sean’s personal and professional life, like when he got engaged. Narcolepsy with cataplexy affects everyone differently, but attacks are often brought on by strong emotions.

Sean Avoiding Emotions Video
Watch Video

Avoiding Emotions to Control Cataplexy

Sean, 33 years old

Partial cataplexy in his face has impacted Sean’s life. Avoiding emotions to control attacks has become part of his personality.

Sharon Social Cataplexy Triggers Video
Watch Video

Social Situations Triggered My Cataplexy

Sharon, 43 years old

After experiencing cataplexy while holding her infant son, Sharon started to avoid social situations.

Narcolepsy Symptoms Montage Video
Watch Video

Narcolepsy Symptoms Can Include Sleep Paralysis, Hypnagogic Hallucinations

Emily, Sean, Sharon, & Scott

Narcolepsy symptoms can go beyond excessive daytime sleepiness and cataplexy. People living with narcolepsy share their experiences with hypnagogic hallucinations, sleep paralysis, and disrupted nighttime sleep.

Scott Support Video
Emily Daily Life Video
Montage Video of Personal Stories
Montage Video of tips for living with narcolepsy
Scott Support Video
Watch Video

My Advice for Living With Narcolepsy

Scott, 48 years old

Scott shares his experience living with narcolepsy and offers advice to others living with the disorder. Hear his thoughts about finding support, the right doctor, as well as the inner resilience needed to manage life with narcolepsy.

Emily Daily Life Video
Watch Video

Living With Narcolepsy Day to Day

Emily, 28 years old

Hear the narcolepsy tips and tricks Emily has to share about the small changes she has made to help her day to day.

Montage Video of Personal Stories
Watch Video

Personal Stories of Living With Narcolepsy

Ijeoma, Matt, Sean, & Leah

People with narcolepsy share their personal stories, perspectives, and insights on living with narcolepsy. They share their thoughts on living a full and productive life with narcolepsy.

Montage Video of tips for living with narcolepsy
Watch Video

Tips for Daily Living With Narcolepsy

Ijeoma, Matt, Sean, & Leah

Hear tips for daily living with narcolepsy from people who have the disorder. From building a daily routine to practicing mindfulness, people living with narcolepsy share how they have learned to manage their symptoms day to day.

Scott Impact of Narcolepsy Video
Emily Managing Symptoms Video
Matt Excessive Daytime Sleepiness Video
Leah Social impact of narcolepsy video
Scott Impact of Narcolepsy Video
Watch Video

Biggest Impact of Narcolepsy

Scott, 48 years old

Scott shares why he believes narcolepsy changed the way his friends and family saw him and how the disorder set the course for his life today.

Emily Managing Symptoms Video
Watch Video

Narcolepsy Doesn’t Rule Her Life

Emily, 28 years old

Emily shares how narcolepsy is a part of her life, but doesn’t rule it. Hear about what symptoms she experiences and how she lives her life with narcolepsy.

Matt How to explain narcolepsy video
Watch Video

How to Answer, “What Is Narcolepsy?”

Matt, 37 years old

What is narcolepsy? Getting other people to understand the impact of narcolepsy symptoms is not easy. Hear from Matt on how he explains his narcolepsy symptoms to others.

Leah Social impact of narcolepsy video
Watch Video

How to Manage the Social Impact of Narcolepsy

Leah, 24 years old

Leah shares the impact of narcolepsy on her social life. If things don’t go as planned, she remembers that every day is a new opportunity.

Emily Support Group Video
Sharon Finding your narcolepsy support group video
Katie Preparing for Next Appointment video
Emily Support Group Video
Watch Video

Support System for People Living With Narcolepsy

Emily, 28 years old

Emily shares the importance of having a support system and who she includes in hers.

Sharon Finding your narcolepsy support group video
Watch Video

Finding Your Narcolepsy Support Group

Sharon, 43 years old

Finding your support group may take time, but be patient and remember that you are not alone.

Katie Preparing for Next Appointment video
Watch Video

Preparing for Your Next Doctor Appointment if Diagnosed With Narcolepsy

Matt, Leah, Ijeoma, Katie, & Sharon

Living with narcolepsy can be very challenging. Hear people living with narcolepsy explain their approach to working with their physician.

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Performance of routine tasks without awareness or memory.

Difficulty focusing or concentrating.

Brief loss of muscle tone with retained awareness, often triggered by strong emotions.

Frequent shifts between different states of sleep and wakefulness at night.

The inability to stay awake and alert during the day; a constant need for sleep or unintentionally falling asleep.

A chemical in the brain that helps maintain wakefulness.

Vivid dream-like experiences that occur while falling asleep.

Dream-like events that occur when falling asleep. Called hypnopompic hallucinations if they occur when waking up.

A chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time.

Unintentionally falling asleep due to excessive daytime sleepiness; “sleep attacks.”

Restorative sleep state with decreased muscle tone.

Occurs at night and includes dreams; muscles are not active to prevent people from acting out dreams.

Daytime and evening habits to improve sleep.

Brief total loss of voluntary muscle control when falling asleep or while waking up.

People with type 1 narcolepsy can be diagnosed by their cataplexy or low levels of hypocretin.

The cause of type 2 narcolepsy is unknown.