“I’m continually editing and creating routines for my life.”– Leah

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Tips for Daily Living With Narcolepsy

Finding what works for you can help you live better with narcolepsy.

Living with narcolepsy can be challenging, but there are things you can do to help lessen the impact of your symptoms.

Healthy Habits for Living With Narcolepsy

  • Maintain a regular sleep-wake schedule
  • Exercise regularly
  • Schedule daytime naps
  • Avoid caffeine in the evening
  • Avoid alcohol
  • Avoid smoking
  • Eat a healthy dinner several hours before bedtime and avoid late-night snacks

People living with narcolepsy share their experiences.

See what others living with narcolepsy say has helped them in managing their symptoms day to day

  • You have to find what works for you. Be intentional in your approach. – Andre
  • Keep a consistent sleep schedule. – Sean
  • Practice mindfulness or yoga to reduce stress. – Leah
  • Schedule naps during the day. – Matt
  • Avoid screen time before bed. – Katie
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Tips for Daily Living With Narcolepsy

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Personal Stories of Living With Narcolepsy

Tips for Daily Living With Narcolepsy

Katie, Sharon, Ijeoma, & Leah

Hear tips for daily living with narcolepsy from people who have narcolepsy. From building a daily routine to practicing mindfulness, people living with narcolepsy share how they have learned to manage their symptoms day to day.

Personal Stories of Living With Narcolepsy

Ijeoma, Sharon, Leah, & Katie

People with narcolepsy share their personal stories, perspectives, and insights on living with narcolepsy. They share their thoughts on living a full and productive life with narcolepsy.

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Tips for Daily Living With Narcolepsy

Katie, Sharon, Ijeoma, & Leah

Hear tips for daily living with narcolepsy from people who have narcolepsy. From building a daily routine to practicing mindfulness, people living with narcolepsy share how they have learned to manage their symptoms day to day.

More
Personal stories of living with narcolepsy video thumbnail
Watch Video

Personal Stories of Living With Narcolepsy

Ijeoma, Sharon, Leah, & Katie

People with narcolepsy share their personal stories, perspectives, and insights on living with narcolepsy. They share their thoughts on living a full and productive life with narcolepsy.

More
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Vivid dream-like experiences that occur while falling asleep or while waking up.

Occurs at night and includes dreams; muscles are not active to prevent people from acting out dreams.

People with type 1 narcolepsy can be diagnosed by their cataplexy or low levels of hypocretin (also known as orexin).

The cause of type 2 narcolepsy is unknown.

Restorative sleep state with decreased muscle tone.

Daytime and evening habits to improve sleep.

Brief total loss of voluntary muscle control when falling asleep or while waking up.

Also known as orexin, hypocretin is a naturally occurring chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time.

Unintentionally falling asleep due to excessive daytime sleepiness; “sleep attacks.”

The inability to stay awake and alert during the day; a constant need for sleep or unintentionally falling asleep.

A naturally occurring chemical in the brain that helps maintain wakefulness.

Vivid dream-like experiences that occur while falling asleep or while waking up.

Frequent shifts between different states of sleep and wakefulness at night.

Difficulty focusing or concentrating.

Brief loss of muscle tone with retained awareness, often triggered by strong emotions.

Performance of routine tasks without awareness or memory.