“Having more information makes me feel like I'm in control of my experience.” – Leah
Know Narcolepsy Resources
Know Narcolepsy provides tools to help better understand your symptoms and their impact. Download our educational resources and connect with us on social media.
Know Narcolepsy Social Media
Connect with us through these social media outlets. Be sure to visit our YouTube channel for personal stories about living with narcolepsy.
*The Know Narcolepsy Survey was a three-party survey of 1,654 US adults including those with narcolepsy (n=200), the general public (n=1,203), and physicians (n=251) currently in clinical practice who have treated patients with narcolepsy in the last two years. The survey was conducted online in March, April, and August 2018, respectively, by Versta Research on behalf of Harmony Biosciences, LLC. The Narcolepsy Network collaborated on the patient survey.
Connect With the Narcolepsy Community
It helps being able to share and talk to someone about everyday struggles with narcolepsy.
Emily, 28 years old, living with narcolepsy
Other Educational Resources
Several groups are available that provide information, support and other resources for people living with narcolepsy, and for their family and friends.*
FDA Voice of the Patient: Narcolepsy
A report from the US Food and Drug Administration's patient-focused drug development initiative
*The third-party sites listed above are for informational purposes only. Know Narcolepsy strives to provide the most useful and accurate resources available to people living with narcolepsy, but we do not endorse and are not responsible for the content found on these websites.
Performance of routine tasks without awareness or memory.
Difficulty focusing or concentrating.
Brief loss of muscle tone with retained awareness, often triggered by strong emotions.
Frequent shifts between different states of sleep and wakefulness at night.
The inability to stay awake and alert during the day; a constant need for sleep or unintentionally falling asleep.
A chemical in the brain that helps maintain wakefulness.
Vivid dream-like experiences that occur while falling asleep.
Dream-like events that occur when falling asleep. Called hypnopompic hallucinations if they occur when waking up.
A chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time.
Unintentionally falling asleep due to excessive daytime sleepiness; “sleep attacks.”
Restorative sleep state with decreased muscle tone.
Occurs at night and includes dreams; muscles are not active to prevent people from acting out dreams.
Daytime and evening habits to improve sleep.
Brief total loss of voluntary muscle control when falling asleep or while waking up.
People with type 1 narcolepsy can be diagnosed by their cataplexy or low levels of hypocretin.
The cause of type 2 narcolepsy is unknown.