“By learning more about narcolepsy, I feel more in control.”– Leah

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Narcolepsy Resources

Do you or does someone you know have narcolepsy?

Access to credible information can help improve understanding of narcolepsy symptoms and their impact. These resources can help you find a support group or learn more about living with a rare disorder.

Know Narcolepsy Tools

Know Narcolepsy provides tools to help better understand your symptoms and their impact. Download our educational resources and connect with us on social media.

Know your narcolepsy symptoms

Know your narcolepsy symptoms

Narcolepsy Assessment Tool

Assess how narcolepsy may be interfering with your life and share the results with your healthcare provider. Get started »

Science of Narcolepsy

Science of Narcolepsy

Time to Unwind Mindfulness Videos

Reduce stress with mindfulness. Try these 3 guided videos to help you breathe easier, loosen up, and picture peace. Get Started »

Science of Narcolepsy

Science of Narcolepsy

Science of Narcolepsy Handout

Learn about the natural chemicals in the brain that play a role in wakefulness and sleep and how they affect narcolepsy. Download PDF »

Know Narcolepsy Survey

Know Narcolepsy Survey

Navigating Narcolepsy Handout

Learn how others living with narcolepsy have managed during challenging times. Download PDF »

Guide to Telemedicine

Guide to Telemedicine

Guide to Telemedicine

Feel confident about your next virtual appointment. Use this guide to learn what to expect and how to prepare. Download PDF »

Know Narcolepsy Survey*
Know Narcolepsy Survey*

Learn about the impact of narcolepsy and the results from the Know Narcolepsy Survey. Download PDF »

*The Know Narcolepsy Survey was a three-part survey of 1654 US adults including those with narcolepsy (n=200), the general public (n=1203), and physicians (n=251) currently in clinical practice who have treated patients with narcolepsy in the last two years. Surveys of people with narcolepsy and the general public were conducted online in March and April 2018, and physicians were surveyed in August 2018. Versta Research conducted the survey on behalf of Harmony Biosciences. The Narcolepsy Network collaborated on the patient survey.

Know Narcolepsy Survey

Know Narcolepsy Social Media

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Connect with us through these social media outlets. Be sure to visit our YouTube channel for personal stories about living with narcolepsy.

Connect With the Narcolepsy Community

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Narcolepsy Network

A national patient support organization focused on educating and empowering people with narcolepsy as well as the public at large.

The Narcolepsy Network has gathered a list of reliable groups where people living with narcolepsy can share their experiences.

Find a group in your area »

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Wakeup Narcolepsy Logo

Wake Up Narcolepsy

A 501(c)(3) not-for-profit organization that seeks to raise narcolepsy awareness, bringing direction to the search for a cure while providing a strong community of support to patients and caregivers.

Wake Up Narcolepsy keeps an up-to-date list of their weekly online support group meetings that can be found at www.wakeupnarcolepsy.org/community along with the latest news and educational events.

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Other Educational Resources

Several groups are available that provide information, support and other resources for people living with narcolepsy, and for their family and friends.

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National Sleep Foundation

A non-profit organization dedicated to improving health and well-being through sleep education and advocacy.

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Project Sleep

An organization raising awareness about sleep health and sleep conditions, including programming to empower and support people with narcolepsy.

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Global Genes Logo

Global Genes: Allies in Rare Disease

Global Genes is a global patient advocacy organization that focuses on connecting, empowering and inspiring the rare disease community.

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National Organization for Rare Disorders

A patient advocacy organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

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Find a group that fits your personality and helps you find your niche.

Matt, living with narcolepsy

The third-party sites listed above are for informational purposes only. Know Narcolepsy strives to provide the most useful and accurate resources available to people living with narcolepsy, but we do not endorse and are not responsible for the content found on these websites.

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Vivid dream-like experiences that occur while falling asleep or while waking up.

Occurs at night and includes dreams; muscles are not active to prevent people from acting out dreams.

People with type 1 narcolepsy can be diagnosed by their cataplexy or low levels of hypocretin.

The cause of type 2 narcolepsy is unknown.

Restorative sleep state with decreased muscle tone.

Daytime and evening habits to improve sleep.

Brief total loss of voluntary muscle control when falling asleep or while waking up.

A naturally occurring chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time.

Unintentionally falling asleep due to excessive daytime sleepiness; “sleep attacks.”

The inability to stay awake and alert during the day; a constant need for sleep or unintentionally falling asleep.

A naturally occurring chemical in the brain that helps maintain wakefulness.

Vivid dream-like experiences that occur while falling asleep or while waking up.

Frequent shifts between different states of sleep and wakefulness at night.

Difficulty focusing or concentrating.

Brief loss of muscle tone with retained awareness, often triggered by strong emotions.

Performance of routine tasks without awareness or memory.