“Having more information makes me feel like I'm in control of my experience.” – Leah

Advancements in the understanding of narcolepsy are happening. Sign Up Now »

Advancements in the understanding of narcolepsy are happening. Sign Up Now »

Narcolepsy Resources

Do you or does someone you know have narcolepsy?

Access to credible information can help improve understanding of narcolepsy symptoms and their impact. These resources can help you find a support group or learn more about living with a rare disorder.

Know Narcolepsy Resources

Know Narcolepsy provides tools to help better understand your symptoms and their impact. Download our educational resources and connect with us on social media.

Know your narcolepsy symptoms

Narcolepsy Assessment Tool

Assess how narcolepsy may be interfering with your life and share the results with your healthcare provider. Get started »

Science of Narcolepsy

Science of Narcolepsy

Learn about the chemicals in the brain that play a role in sleep and wakefulness and how they affect narcolepsy. Download PDF »

Know Narcolepsy Survey

Know Narcolepsy Survey*

Learn about the impact of narcolepsy and the results from the Know Narcolepsy Survey. Download PDF »

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Know Narcolepsy Social Media

Connect with us through these social media outlets. Be sure to visit our YouTube channel for personal stories about living with narcolepsy.

*The Know Narcolepsy Survey was a three-party survey of 1,654 US adults including those with narcolepsy (n=200), the general public (n=1,203), and physicians (n=251) currently in clinical practice who have treated patients with narcolepsy in the last two years. The survey was conducted online in March, April, and August 2018, respectively, by Versta Research on behalf of Harmony Biosciences, LLC. The Narcolepsy Network collaborated on the patient survey.

Connect With the Narcolepsy Community

Narcolepsy Network Logo

Narcolepsy Network

A national patient support organization focused on educating and empowering people with narcolepsy as well as the public at large.

The Narcolepsy Network has gathered a list of reliable groups where people living with narcolepsy can share their experiences. Find a group in your area.

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www.narcolepsynetwork.org
www.narcolepsynetwork.org/
resources/support-groups

Wakeup Narcolepsy Logo

Wake Up Narcolepsy

A 501(c)(3) not-for-profit organization that seeks to raise narcolepsy awareness, bringing direction to the search for a cure while providing a strong community of support to patients and caregivers.

Wake Up Narcolepsy keeps an up-to-date list of their Living With Narcolepsy meetings and relevant events throughout the country.

More

www.wakeupnarcolepsy.org
www.wakeupnarcolepsy.org/
wunevents

It helps being able to share and talk to someone about everyday struggles with narcolepsy.

Emily, 28 years old, living with narcolepsy

Other Educational Resources

Several groups are available that provide information, support and other resources for people living with narcolepsy, and for their family and friends.*

AAHS Logo

American Alliance for Healthy Sleep

A membership organization dedicated to partnering patients, providers, and the public to improve the lives of patients with sleep disorders and highlight the importance of healthy sleep.

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www.sleepallies.org

NSF Logo

National Sleep Foundation

A non-profit organization dedicated to improving health and well-being through sleep education and advocacy.

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www.sleepfoundation.org
www.sleep.org

Project Sleep Logo

Project Sleep

An organization raising awareness about sleep health and sleep conditions.

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www.project-sleep.com/

Global Genes Logo

Global Genes: Allies in Rare Disease

Global Genes is a global patient advocacy organization that focuses on connecting, empowering and inspiring the rare disease community.

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www.globalgenes.org

NORD Logo

National Organization for Rare Disorders

A patient advocacy organization committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.

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www.rarediseases.org

FDA Voice of the Patient: Narcolepsy
FDA Voice of the Patient: Narcolepsy

A report from the US Food and Drug Administration's patient-focused drug development initiative

More

www.fda.gov/downloads/ForIndustry/User Fees/PrescriptionDrugUserFee/UCM402907.pdf

*The third-party sites listed above are for informational purposes only. Know Narcolepsy strives to provide the most useful and accurate resources available to people living with narcolepsy, but we do not endorse and are not responsible for the content found on these websites.

Connect with Know Narcolepsy on Social Media:
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Performance of routine tasks without awareness or memory.

Difficulty focusing or concentrating.

Brief loss of muscle tone with retained awareness, often triggered by strong emotions.

Frequent shifts between different states of sleep and wakefulness at night.

The inability to stay awake and alert during the day; a constant need for sleep or unintentionally falling asleep.

A chemical in the brain that helps maintain wakefulness.

Vivid dream-like experiences that occur while falling asleep.

Dream-like events that occur when falling asleep. Called hypnopompic hallucinations if they occur when waking up.

A chemical in the brain that helps maintain wakefulness and prevent non-REM sleep and REM sleep from occurring at the wrong time.

Unintentionally falling asleep due to excessive daytime sleepiness; “sleep attacks.”

Restorative sleep state with decreased muscle tone.

Occurs at night and includes dreams; muscles are not active to prevent people from acting out dreams.

Daytime and evening habits to improve sleep.

Brief total loss of voluntary muscle control when falling asleep or while waking up.

People with type 1 narcolepsy can be diagnosed by their cataplexy or low levels of hypocretin.

The cause of type 2 narcolepsy is unknown.