“I'll never be that person I once was, but I have quality of life.” – Scott
Managing Life With Narcolepsy
Day-to-day life with narcolepsy symptoms can be a challenge, but managing the disorder is possible.
Getting to know narcolepsy is more than knowing the symptoms—knowing narcolepsy is about understanding its impact and finding ways to live well with the disorder. In addition to some lifestyle changes, listening to other people living with narcolepsy share their stories or joining support groups can make a difference.
Finding ways to manage life with narcolepsy can be an adjustment, but there are some everyday changes that can be made to help with symptoms.
- Maintain a regular sleep schedule
- Schedule daytime naps to avoid unplanned napping that could interfere with nighttime sleep
- Avoid caffeine in the evening, including soda, coffee, or tea
- Avoid alcohol, as it can cause sleep to be disrupted
- Avoid smoking
- Eat a healthy dinner several hours before bedtime, and avoid late-night snacks
- Keep the bedroom quiet and comfortable
- Limit use of electronic devices before bedtime
- Exercise regularly
What is narcolepsy really like?
Never in a million years could I have imagined my life going so far off the intended course.
Scott, 48 years old, living with narcolepsy with cataplexy